Bridging the gaps in the setup of a functional epilepsy monitoring unit in Uganda to support epilepsy surgery
Domaine:
healthcareType de record:
paper
Créateur:
EmmDavShaKhr
Éditeur:
Jou
Hôte:
As many as 80 million people in the world have epilepsy. Those living in the developing world are disproportionately affected. Approximately 770,000 people in Uganda are affected by epilepsy. Drug-resistant epilepsy affects approximately 30%–40% of patients with epilepsy, and one-third of these patients may be eligible for surgical management. This article describes the formation of an epilepsy monitoring unit in Uganda as the first step toward establishing a surgical epilepsy program for pediatric patients. A hybrid remote and in-person collaborative model was developed between teams in Mbale and Kampala in Uganda and Chicago in the US. The authors describe a process that spanned 2 years (2021–2023) for developing readiness for referrals for pediatric epilepsy surgery candidates in Uganda.
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